The Epilepsy Foundation Wellness Institute exists to improve the quality of life of people living with epilepsy and those who care for them. It supports an integral part of epilepsy self-management strategies consisting of nonmedical approaches and behaviors that a person with epilepsy can use to promote seizure control and enhance their overall life success. The Wellness Institute emphasizes a holistic and strengths-based approach that includes the eight identified dimensions of wellness: Emotional Health, Sleep, Independent Living, Physical Activity, Education and Employment, Social Relationships, Stress Management, and Diet and Nutrition.
The primary goals of the Wellness Institute are to:
1) raise awareness and educate audiences on all dimensions of wellness by providing them with science-based information; 2) provide psychosocial support and follow up care to persons with epilepsy; 3) identify professional and community resources at both the national and local level; 4) raise the standard of care for those living with epilepsy by training and educating caretakers and professionals; 5) promote research and innovative therapies; 5) advocate for those with epilepsy; 6) build a culture of wellness throughout the Epilepsy Foundation; and 6) form partnerships and collaborations with local organizations, federal, national and corporate partners.
The primary responsibility of the Wellness Institute Mental Health Program Manager is to develop and promote emotional health and wellness components into all the Epilepsy Foundation’s programming, content and training and to work closely with other staff and local organizations to respond to callers in distress with immediate and follow-up services. This position will develop and coordinate the Foundation’s national volunteer peer support network to support mental health.
Essential Duties and Responsibilities
Works closely with the Information and Referral Department to respond in a timely and appropriate manner to Foundation inquiries from those who exhibit mental health distress, particularly depression and anxiety concerns. Communicates information on epilepsy self-management and wellness, emotional health, educational and workplace rights, and community resources, among others, in a compassionate and understanding manner. Maintains appropriate professional and ethical boundaries. Works with the Information and Referral Department to administer a depression screening instrument that will identify callers in need of additional follow-up services. Provides support, clinical consultation and training as needed to the national staff and those in the Foundation’s 51 local organizations on depression and related mental health interventions. Gathers resource information to respond to public inquiries and works closely with the Health Resource Specialist to build the online resource directory. Serves as the coordinator of the Wellness Institute’s volunteer peer support network initiative to address self-management wellness challenges for persons with epilepsy, particularly challenges to emotional wellbeing. Works with existing volunteer peer support program staff from the Foundation’s local organizations to create a national model of service delivery and volunteer training and support. Collects program data, develops program materials, and works with the local organizations to expand this initiative. Participates and assists in the coordination of national and local meetings to support the Wellness Institute and the implementation of its initiatives. This will include national experts in the field of epilepsy, emotional health and wellness, national organizations, government partners, the Foundation’s local organizations and consumers. Reports on trends, concerns, and latest research or industry changes related to the field of epilepsy self-management and wellness, as this impacts research or public policy. Collaborates with staff and experts on Wellness Institute education and awareness activities. Maintains a record of all public inquiries using the iCarol database. Compiles monthly statistics and other data for dissemination and/or reports as requested. Assists with other duties as needed/assigned, such as assisting with the Epilepsy Foundation’s National Walk and Skill Building Institute, representing the organization at community events, health fairs or similar events, and working on new initiatives such as outreach to under-served communities, to name a few.
Education and Experience
Master’s degree in social work, mental health counseling or related field preferred. 4-6 years’ experience working with distressed clients seeking information or referral services and crisis response. Experience in customer service or call center environment helpful. Experience providing mental health counseling to diverse populations. Knowledge of mental health issues, especially depression and anxiety, and chronic disability preferred. Knowledge of epilepsy and seizures, disability self-management, and wellness desirable. Experience working with the epilepsy community is a plus. Experience developing and managing community-based mental health programs and/or managing national programs in not for profit service based organizations. Experience designing, implementing and evaluating direct service, volunteer, educational and/or training programs for consumers and professionals, including creating accompanying materials and program reports, and providing technical assistants to constituents desirable. Experience with modern business communication processes. Knowledge of and familiarity with Microsoft Office software. Experience with webcast production and survey software, such as Survey Monkey, Abode Connect and GoToWebinar, preferred. Competence working with organizational databases and proficiency with data input. Experience writing for professional publications and presentation at meetings and conferences a plus.
Specific Knowledge, Skills, and Abilities
Ability to work with clients in distress and maintain a calm, compassionate and helpful manner that is responsive to their needs. Excellent communication skills and the ability to listen with empathy and share technical information with accuracy. Ability to communicate effectively both orally and in writing. Knowledge of or ability to learn about epilepsy and seizures, mental health needs of persons with epilepsy, wellness, epilepsy self-management, and disability issues in general. Knowledge of volunteer programs, education and training models and mental health programs for all ages, including their design and development, implementation and evaluation. Ability to gather health information data, reports, statistics and census information to inform program planning. Ability to handle multiple tasks simultaneously and prioritize work. Strong administrative and organizational skills with great attention to detail. Ability to understand, follow and receive oral and written instructions and feedback. Personal skills that include strong initiative, ability to work independently with minimal supervision, and capacity to work well with others. Knowledge of cultural competence and ability to work with diverse groups of people.
The Epilepsy Foundation, a national non-profit with nearly 50 local organizations throughout the United States, has led the fight against seizures since 1968. We are an unwavering ally for individuals and families impacted by epilepsy and seizures. We work to prevent, control, and cure epilepsy through community services, public education, federal and local advocacy, and supporting research into n...ew treatments and therapies. We work to ensure that people with seizures have the opportunity to live their lives to their fullest potential.