BIO5 Institute at the University of Arizona is in search of a Clinical Research Coordinator (Clinical Research Coordinator III). This position will support the SCN8A International Registry, which is hosted by the Shay Emma Hammer Research Foundation. The registry is a parent reported database tracking the natural history of a pediatric epilepsy syndrome. The questionnaire is accessible participating families on REDCap and represents a detailed and comprehensive (15 modules) assessment of medical, genetic, developmental, treatment and seizure history of each subject and includes longitudinal data. Thus far there are over 300 international participants and Registry Drives take place each year to recruit additional families and to remind those that have already participated to update their
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